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I'm ok with this

Me Not Migraines
;
Do migraines mean you're missing out
on the moments that matter?
Talking to your doctor
about your migraines
It can be hard to get across how badly migraines affect you and your life. Below are some tips for communicating your problems with migraines to your doctor.6
Making yourself heard
  • Go prepared, have a list of questions you want to ask your doctor.
    Click the button below for a full list.
Bekah's story
I still believe that one day the right treatment will come along...
Bekah, UK

I had never had a migraine in my life until 8 years ago—I got a headache that just wouldn't shift. There seemed no rhyme or reason as to why this started—but I haven't had a single day since where, to a greater or lesser degree, I haven't had a headache, or chronic migraine as I now have the official diagnosis. It's hard not to feel sad. There's sadness when I stop coping for a minute and just consider my chronic migraine.

I feel sad for the days, weeks, months of my life that I've lost just being on a sofa in excruciating pain; unable to ease it no matter what drug I took, and I've taken the lot!

Sad that every time I try a new treatment, whether it's occipital nerve blocks, muscle paralysing injections, or even alternative and holistic therapies, they don't work, and my desperate hopes are dashed again.

But most of all I'm sad about the person my chronic migraine has made me. I'm still me, of course, but a half-light version of myself. When I am blessed with the rare day of a low-level headache, I start to feel like the old me, like my real self, and my joy starts to bubble to the top. Then, when the pain inevitably returns again, I go back to coping, not living once more. My temper is shorter, my humour less, all the room in my brain for creativity and inspiration is taken up by me fighting the drills I can feel boring into my temples.

I still believe that one day the right treatment will come along to lift this from me, or maybe it'll just go away as mysteriously as it started. I just hope I don't have to wait another eight years.

Additional support
There may be many local support groups in your area. We have selected a few groups which have very useful information and advice. If you'd like your organisation to appear on our page, please contact us.

References

  1. Migraine Action. Migraine Triggers. Available from: http://www.migraine.org.uk/information/triggers. Last accessed September 2018.
  2. Sacco S, et al. J Headache Pain 2018; 19: 76.
  3. NHS UK. Hormone headaches. Available from: https://www.nhs.uk/conditions/hormone-headaches/. Last accessed September 2018.
  4. Steiner T, et al. J Headache Pain 2007; 8: S3.
  5. The Migraine Trust. Keeping a migraine diary. Available from: https://www.migrainetrust.org/living-with-migraine/coping-managing/keeping-a-migraine-diary/. Last accessed September 2018.
  6. The Migraine Trust. Visiting your GP. Available from: https://www.migrainetrust.org/living-with-migraine/seeking-medical-advice/visiting-your-gp/. Last accessed September 2018.
  7. Uemura N, et al. Cephalalgia 2003; 23(7):707. Gawel M, et al. Cephalalgia 2003; 23 P5N73:711. (Abstract); Uemura N, et al. Headache 2003; 43(5):584. (Abstract); Charlesworth CNS Drugs; 2003; 17(9):653-667
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